No One Should
Face NETs Alone.

At FLaNET, we believe that no patient or caregiver should face a neuroendocrine tumor (NET) diagnosis alone. Whether you are newly diagnosed, navigating treatment options, or supporting a loved one, we’re here to help you quickly and clearly understand what’s happening, find expert care, and connect with a compassionate community.

Our Story

FLaNET was founded by patients, caregivers, and clinicians who saw the need for a trusted, patient-driven hub for NET education and support in Florida. What started as a small group has grown into a statewide community and national resource, bridging the gap between complex medical information and the real-world questions families face every day.

What We Do

For Patients & Families

Provide easy-to-understand resources, patient stories, and supportive programs that reduce fear and confusion.

For Physicians

Deliver trusted referral tools, educational content, and a directory of NET specialists to improve care and outcomes.

For Partners

Create media-ready campaigns, awareness initiatives, and impact-driven opportunities to support rare disease advocacy.

Our Vision

To create greater net awareness within our community, leading to a more unified patient voice, supporting earlier detection and subsequent treatment of these rare diseases.

What Makes Us Different​

FLaNET is more than an organization, it’s a true community. We are patient-led and shaped by the voices of caregivers, advocates, and medical experts who understand the challenges of living with NETs. As a nonprofit, our work is powered by donors, volunteers, and a dedicated board of directors, all united by a single mission: to ensure no one faces NETs alone.

Join Our Community

Whether you are seeking answers, support, or ways to give back, you belong here. Together, we’re building a future where every NET patient and caregiver feels informed, supported, and connected.